Tuesday, October 20, 2009

Ashers story

This is something i never thought i would have to do, but unfortunately here it is:
Let me introduce you to my grandson. This is Asher:




Asher was 10 months old when this picture was taken in September 09. He seemed like a perfect bundle of health. Three weeks later he was fighting for his life. On October 5th, after a couple of weeks of doctor and ER visits, he was diagnosed with a brain tumor and immediately taken to PICU. They had to drill a hole in his skull to relieve the pressure that was building up because the tumor was blocking the spinal fluid to drain properly.


Here is Asher in PICU on Oct 9th:





On October 9th he underwent brainsurgery at the Children's hospital in Oklahoma City to remove the tumor, the surgeon was sure she had gotten all of it and we were thrilled to hear the news and then we were told that the tumor is malignant.


The name of the tumor is extraskeletal myxoid chondrosarcoma (EMC). Average age for humans that have this type of tumor is 40yrs and up and it is even more rare for it to be in the brain. The doctors explained to us that they were baffled because they have never treated of a case like this nor have their expert colleages around the USA who were consulted, one said that he has HEARD of one case. This type of tumor does not respond well to chemo so the doctors are looking at localized radiation. We will know for sure how long and how often he will go thru these treatments tomorrow when we go see his oncologist.


My daughter spent day and night with Asher while he was in the hospital till his release last friday.


Here is the reason for this post: my daughter has been unable to work because she needs to take care of him, she is on unpaid medical leave from work. Even though his medical cost is covered they are still facing basic expenses such as rent, food, utilities, gas to drive back and forth to hospital and doctor visits. Asher will most likely be in and out of the hospital for the next year. Her dad and I are planning to help out as much as we can but i decided to start up a fund for Asher to hopefully give my daughter some peace of mind so she can fully focus on getting Asher healthy without worrying about paying her bills. They can use all the help they can get and even more importantly they need all the prayers they can get also.


If you would like to contribute to Ashers fund you can do so by donating here:







or you can also send your donation via paypal to his account. The email address is Ashersmedicalfund@gmail.com

No paypal? No problem! If you would prefer to send a donation to Ashers fund you can do so by sending it to:
Allegiance Credit Union
Asher Reynolds Medical Fund
Account: 384045
101 N. Robinson, Ste 210
Oklahoma City, OK 73102

Any questions about Asher? his treatment? you can email me at
bkokc00@gmail.com, i'll be happy to answer any questions!

If you would like to read more about his journey you can visit his website here:
http://www.caringbridge.org/visit/asherrayreynolds

Thank you for reading my post and please keep him and his mommy in your prayers!

Britta
Ashers G'ma




12 comments:

  1. I am praying for you all. I am so sorry. He is so cute. I will help as i can.

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  2. I'm praying for your family. There is an organization that may be able to help. Please contact hugsandhope.org and see if they'll post Asher on their website.

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  3. I found my way to your site because Demi Moore tweeted it to her 2.4 million followers:
    http://twitter.com/mrskutcher/statuses/7509680282
    Hope this brings you the help you need (both financial and prayer support). I'll keep Asher in my prayers.

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  4. Thank you for reading about Asher, prayers DO help. I am trying to find them transportation (plane) to Indiana to start his proton radiation treatment on tuesday, please pray that we'll succeed.

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  5. Massive hope from over the pond. I wish I had some money

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  6. i posted this on my twitter and facebook, my prayers are with you and your sweet angel :]

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  7. Dear Asher's Grandma,
    I'm an American, originally from NJ, living in Malaysia (Kuala Lumpur) who found my way to your site from Brooke Burke's tweet.

    Asher's story really touched me and I was able to make a small donation to your fund. I will also say special prayers for Ashen over the next few months. Don't ever give up and stay strong for Asher and your daughter. Envision Asher growing up as a healthy little boy and it will happen.

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  8. Be strong Asher little one...

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  9. In principle, a good happen, support the views of the author

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  10. Hello, Give The World Your Heart.org offers to build and Donate Asher a Happy Heartbeats of Love Counter where family and friends all over the world can Donate their real heartbeats from Positive Activity every day on behalf of Asher.

    It is something like the old idea of sending Asher a Get Well card but a thousand times better because Asher can Donate his own Heartbeats as a Legacy to the World.

    If this interests you contact pauljcody@gtwyh.org

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  11. The world needs awareness, and what you are doing is great.

    ReplyDelete